People with a learning disability or autism, their family, carers and advocates

As part of their #DeclareYourCare campaign, this month the Care Quality Commission (CQC) are encouraging people with a learning disability or autism, their family, carers and advocates to feedback on care.

CQC’s research reveals that people with a learning disability are more likely to regret not complaining about poor care than those without.

The lack of information, about a health condition or treatment options not being well explained, are the main reasons for people with a learning disability or their carer to want to raise a concern.

People with learning disabilities are also twice as likely to have concerns about maternity services and mental health services than people without a learning disability.

  • Half (50%) of adults with learning disabilities or their carers said that they have wanted to raise a complaint about the lack of information about their care or treatment.
  • People with learning disabilities are 17% more likely to regret not complaining about poor care than people without learning difficulties.
  • People with learning disabilities are twice as likely to have concerns about maternity services and mental health services than people without learning disabilities.

You can download campaign resources from Tuesday 14 January 2020. These include a stakeholder toolkit and a range of digital and social media resources.

Please get in touch if you have any questions: engagementandinvolv[email protected].