A series of short videos has been released sharing Ayad’s experience of communicating his needs and concerns within health and care services.
The videos highlight how important it is for professionals to understand the lived experience of people receiving care, particularly when communication needs or complex support arrangements are involved.
Together, the videos provide a powerful reminder that good care starts with listening.
Watch the videos
Introduction – Ayad’s story
https://www.youtube.com/watch?v=eKRPguhs4M0
In this introduction, Ayad explains his situation and the support he receives from his parents, who are his main carers. As they get older, he talks about the challenges of ensuring his needs continue to be understood and supported.
August update
This update reflects on ongoing experiences and reinforces why it is important that health professionals hear directly from people about what matters to them.
Audio version of Ayad’s introduction
An accessible audio version has been produced so that staff can more easily listen and understand Ayad’s perspective. The aim is to ensure that his concerns and experiences are heard clearly across services.
Additional video from the series
This video continues the conversation and helps build a fuller picture of Ayad’s experience and priorities.
Why this story matters
Stories like Ayad’s are important because they show how systems and services affect real people.
For partners working across the VCSE sector, NHS organisations and local authorities, there are several key messages:
Listening improves care
When people are able to share their experiences directly, services are better able to respond to what actually matters in day-to-day life.
Communication is central to person-centred care
Accessible formats, such as audio versions of videos, can make a significant difference in ensuring information is understood by both professionals and communities.
Lived experience should shape services
Hearing directly from people using services helps organisations design support that works in practice, not just in theory.
Partnership matters
VCSE organisations often play a vital role in helping people share their experiences and ensuring that those voices reach decision makers.
Supporting more person-centred systems
Across Leeds and West Yorkshire there is a growing focus on neighbourhood health, collaboration and co-production.
Stories like Ayad’s help remind everyone involved in planning and delivering services that the voices of people and communities must remain at the centre of this work.
