Leeds Learning Disability Partnership Board
The Leeds Learning Disability Partnership Board meets quarterly and is made up of, councillors, commissioners from health and social care, people with learning disabilities, advocacy, reference groups including family carers and the people’s parliament, forums including Forum Central and providers from statutory, third sector and public health services.
The board focuses its work around the Being Me Strategy 2018-2021 and is the strategic board for learning disabilities in Leeds. The aim of the strategy is that Leeds is best city to live in for people with learning disabilities. The board supports Leeds Health and Wellbeing Board, Transforming Care Programme Board and the Being Me Project Team.
The strategic work is divided into task groups with themed leads: Being Well, Being Social, Being Safe, Employment and Travel.
The Board has 2 Chairs – A Councillor from the local authority and a People’s Parliament representative.
Forum Central has 5 seats on the board and represents the third sector.
Being Me Strategy – Employment Task group
Forum Central currently leads the Learning Disability Employment Task Group, which is delivering on the employment priorities for people with learning disabilities, as part of the Learning Disability Being Me Strategy. The priorities are:
- I have the chance to experience the world of work.
- I am supported to get involved in things like volunteering; work placements; paid employment; starting a business.
- I have the skills I need to help me find a job and keep it
- I feel valued by local employers, and they appreciate my individual skills and strengths.
The Being Me Strategy is overseen by the Leeds Learning Disability Partnership Board. The Employment Task Group takes a city-wide partnership approach in Leeds and includes experts by experience, representatives from third sector organisations, the public sector and employers (including the private sector). In December 2020, the employment task group developed a five-year ambition statement and action plan to continue to deliver on the priorities of the Being Me Strategy. The Employment Task Group meet every 2 months and has four subgroups that meet in between the bi-monthly meetings to focus on actioning specific areas of work connected with helping people with learning disabilities get into, and retain, paid work. The subgroups are:
- Coordination and planning subgroup
- Employer Engagement subgroup
- Pathways and Skills Development subgroup
- Being Employed Leeds Website Development subgroup
The Employment Task Group is co-ordinated by Robert and Amy, and meetings are co-hosted by Experts by Experience and the organisation with whom they work / have been supported into work.
Employment Hub – Advisory Group
Forum Central sits on the advisory group for the development of the learning disability employability hub, current group members include Connect in the North, Leeds City Council, and the DWP.
Lead: Connect in the North
Being Me Strategy – Health Task Group
The health task group leads on improved health and wellbeing outcomes for people with learning disabilities in the city. The priorities set include:
- I am supported to have good health
- I am able to exercise regularly and I have choice about the activities I do to keep fit
- I have the right support and information I need to eat healthily
- I am supported to access the right services to keep me healthy
- I receive a good quality annual health check and health action plan
- I attend the right national screening programmes
- I know about cancer and how to check myself
- I am confident visiting health services like the doctors, chemist, dentist, optician and podiatrist
- I have good communication with health experts and I receive reasonable adjustments when I need them
- I am always listened to
- The information they give me is easy for me to understand
Forum Central attend the health task group and support the work of the group.
Health Task Group Lead: Victoria Treddenick – NHS CCG Commissioning Manager – Learning Disability and Autism
Being Me Strategy – Task Group Themed Leads
Themed lead meetings bring together task group leads and Leeds City Council to share updates on task group progress and trouble shoot problems in the various work-streams.
Lead: Lana Northey – Leeds City Council – Commissioning Programme Leader
The People’s Parliament meets quarterly and is a group of adults with learning disabilities. There are around 40 members. They are a reference group for the Partnership Board and have 8 seats. They:
- Tell the Board what is important to people with learning disabilities and their families
- Share information about plans and changes to services with people outside the meetings
- Provide opportunities for people to share ideas and support each other
Forum Central attend the People’s Parliament meetings.
Lead: Claire Nixson – Asking You! Co-ordinator
Care Management – Being Me Project Team meetings
The Being Me Project Team at Care Management mirrors the task groups of the Being Me Strategy. This project is in its second stage and the project team works to provide strengths based social care in the Learning Disability and Transitions Care Management teams. Sharing of the results, learning and recommendations of the various work-streams is expected in 2020.
Forum Central represents the third sector at the project team meetings.
Lead: Fiona Martin – Service Delivery Manager – Joint Care Management (Learning Disabilities)
Learning Disabilities Mortality Review (LeDeR)
People with learning disabilities die younger. LeDeR (The Learning Disability Mortality Review) has found that the difference between the age at death of people with learning disabilities and the general population is 23 years for men and 27 years for women. Yet many of the causes of these deaths are preventable.
In 2019 a local review panel was set up to review cases in the Leeds area. The purpose of the reviews is to help health and social care professionals and policy makers to:
- Identify the potentially avoidable contributory factors related to
deaths of people with learning disabilities.
- Identify variation and best practice in preventing premature mortality
of people with learning disabilities.
- Develop action plans to make any necessary changes to health and
social care service delivery for people with learning disabilities.
Forum Central represent the Third Sector at the quarterly LeDeR Panel Review meetings.
Transforming Care Oversight Meetings
The NHS Transforming Care Programme is about improving health and care services so that more people can live in the community, with the right support, and close to home.
The NHS national plan, Building the Right Support, published in October 2015 set out what they are doing to make sure this change happens.
Locally in Leeds the Transforming Care Partnership is made up of:
Clinical Commissioning Groups
- Leeds North CCG / Leeds South and East CCG / Leeds West CCG
SRO: Tim Ryley
Email: [email protected]
Forum Central represent the Third Sector at the Transforming Care Oversight monthly Meetings.
Learning Disability Digital Inclusion Network (ALaDDIN)
The Autism & Learning Disability Digital Inclusion Network (‘ALaDDIN’) brings together 20 Third Sector organisations in Leeds to improve digital inclusion and participation for people with autism or learning disabilities, supporting the ambition to make Leeds the most digitally inclusive city for everyone.
Forum Central support the work of the network.
Lead: Carley Stubbs – Pyramid of Arts
Learning Disability and Autism Steering Group
The Learning Disability Steering Group is held every 3 months by Leeds Teaching Hospitals.
Helen Christodoulides, Director of Nursing (Corporate), chairs the meeting.
One of the Get Me Better Champions co-chairs this meeting with Helen.
Forum Central represent the third sector at the steering group meetings.
If you would like to have a copy of the terms of reference, agenda or minutes or would like more information about these meetings please contact the Learning Disabilities team.
Email [email protected] or phone 0113 2066836.
Learning Disability Week Steering Group Meetings
Every year in June Learning Disability Awareness Week takes place. Forum Central attends the steering group meeting to plan events and activities across the week.
Learning Disability Awards Planning Team Meetings
Every two years the Learning Disability Awards Ceremony takes place as part of Learning Disability Awareness week. This is a celebratory event to recognise all the hard work of individuals working in Learning Disability services across the city.